Wednesday, November 15, 2006

 

ASM turns 4





Anna Scott turned the big 4 on Sunday, 11/12. She and 10 of her friends (including 1 boy!!) celebrated with us at the Harris YMCA indoor pool. The party was lots of fun and a success (no one drowned). Special thanks to Heath Greene who made and delivered the birthday cake.

Thursday, November 09, 2006

 

24

10:30pm, Tuesday night: Rachelle and I go to bed. The kids are with my mom.
4:00am (Wednesday): We're up. The sun is not.
6:10am: On plane to New York (LaGuardia).
7:46am: In black Denalli (just like Jack Bauer) to Grand Central Station from LaGuardia. It's rush hour in NYC.
9:07am: On board Metro-North train to New Haven, CT.
10:27am: Train breaks down. We de-train at the next stop (Greenwich), stand under a shelter while rain pours, wait for next train.
10:52am: Board next train for New Haven.
11:33am: Arrive New Haven. Taxi to Yale.
12:25pm: Nurse calls me back to begin appointment. Appointment update below.
2:35pm: Taxi back to train station. We have 15 minutes to catch the train.
2:52pm: On board train (we even had 2 minutes to use the restroom and get a bottled-water).
4:42pm: Arrive Grand Central. It's rush hour. Raining. Must-find-cab.
4:57pm: In cab from Midtown Manhattan to LaGuardia via the Midtown tunnel. It's rush hour.
5:42pm: Arrive LaGuardia. Print boarding pass. Praise Jesus, there's no line at security.
6:05pm: Grab "dinner" at airport.
6:52pm: On plane. En route to Charlotte.
8:52pm: Arrive Charlotte. Drive home.
10:30pm: Climb in bed.

Oh, the kiddos woke up at 6:00am this morning. :)

Appointment update: We had a good visit with Dr. Foss. I am responding "normally" to the Interferon, meeting her expectations. We were glad to hear it. She wants to add a complementary treatment, a form of light therapy (UVB; not PUVA) and/or Nitrogen Mustard. In combination with the Interferon, the UVB treatment should clear up the remaining rash (plus I'll get a sun tan; the first since 1983).

We left encouraged at my progress and certainly feel like we're making headway. Dr. Foss is collaborative in her care and I am in good hands, even though it takes a Jack Bauer effort to see her.

More later. Must-stay-awake-while-at-work.

Tuesday, November 07, 2006

 

We're off!

We head to Yale tomorrow to see the "medicine man". Actually Dr. Foss is an MD and a woman. We hope good news awaits us. Last time we were there, Scott was still recovering from the episode he had in March. It was at that visit Dr. Foss prescribed Interferon shots. He has been faithfully sticking himself 3 days a week since then.

On another note, Will is off too. His mode is the commando crawl. Basically (pardon the pun) he uses his right arm and left leg to drag himself on the ground. All he needs is to visually acquire a target to launch at a top speed of 3 feet per second. He has learned that in his PJ's if he gets moving fast enough it goes like this: right-left-glide, right-left-glide.

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